With Halloween fast approaching, our spirited mindset charges full gear into all things guts, bones, gore, and blood. On this day, our circulatory system is enthusiastically displayed above the skin; a conversation piece in the name of the holiday. For the National Hemophilia Foundation (NHF) however, the conversation on blood—specifically, bleeding disorders—is front and center all year round.
What is a bleeding disorder?
A bleeding disorder is a group of conditions where a genetic abnormality prevents the blood from clotting normally. The most common type of bleeding disorder is hemophilia, but other kinds, such as von Willebrand disease, exist as well. Bleeding in the joints, excessive bruising, and heavy bleeding after injuries are common symptoms of bleeding disorders—but most can be well managed with careful monitoring and treatment. These bleeding disorders are inherited, which means that people are born with them and have the disorder for their entire lives.
What does the NHF do for the bleeding disorder community?
The NHF is wholeheartedly dedicated to a single mission: improving the lives of people with bleeding disorders. To tackle this goal, a variety of avenues are pursued. First up is education: NHF offers many programs and services to spread awareness and knowledge of the bleeding disorder community.
Second is research: For over 4 decades, NHF has been awarding grants and fellowships to support scientific research and the advancement of medical knowledge in the field. The third focus is advocacy: A robust public policy agenda ensures countrywide treatment safety and sees that the voices of the community are heard.
Where does JUICE come in?
JUICE has been working with the NHF for over 5 years, engaging in a fruitful partnership that has only grown over time. We proudly serve as the agency of record for Steps for Living, an online educational curriculum for people in the bleeding disorders community at all life stages, and we sit on the NHF Business Council, working hand in hand to support institutional advancement.
The relationship between NHF and JUICE is founded on one shared value: A commitment to serving and advancing the study of hemophilia and associated bleeding disorders. Thanks to the foundation’s extremely active New York City chapter, we’ve been given ample opportunity to support the cause. Whether it be attending the annual NHF Spring Soiree or participating in CONNECT events such as trivia nights, happy hours, and holiday parties; JUICErs are always the first to RSVP “yes” to a social event that showcases our support.
How can I get involved?
Come out and laugh on Tuesday, October 28th, when NHF will be putting on their 2nd annual Halloween-themed comedy event, What’s So Bloody Funny? The big Halloween bash will feature famed comedian Alex Borstein of the HBO hit series “Getting On” and the voice of Lois Griffin from “Family Guy”, “30 Rock” regular Judah Friedlander, Rory Albanese of “The Daily Show”, Todd Barry of “Louie” and “Comedians in Cars Getting Coffee”, and Marcus Monroe. Plus an open bar, live auction, and even more surprise guests (last year Sarah Silverman made an appearance!). We’ll be attending for the second year in a row, and can’t wait to see what’s in store. You can find out more about the event on the Connect Facebook page. Costumes not required but strongly encouraged. We hope to see you there!