Rare Disease Day

By | 2016-11-04T16:57:01+00:00 February 29, 2016|Events, Rare Diseases, Viewpoints|

Since the early days at JUICE, we have worked closely with various rare disease communities, from hemophilia to cystic fibrosis. This year’s Rare Disease Day —the last day of February—downright exemplifies the meaning of “rare” and we are reminded of the importance to help raise awareness and support for those affected by rare diseases.

In the face of overwhelming unmet needs and ever-increasing healthcare costs it is essential to make better treatments available faster to those who need them the most: patients with rare diseases, a once-abandoned group in need of medical help that nobody was able to procure.

At this year’s World Orphan Drug Conference in Washington DC from April 22-24, we’d like to invite you to stop by our booth and say hello. If prelaunch and early commercialization are areas of interest for you, please consider participating in our roundtable where we’ll facilitate a discussion and share our experience—and keep an eye out for our white paper. Stay tuned!

About the Author:

Florian Brey, MD, PhD

VP, Scientific Strategy/Medical Director

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